Autism spectrum

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My son has autism spectrum, it has really been hard for me to cope.I wake up in hopes that my son would be normal, but that will never happen, I love my son very much but
its very hard for me to deal with. I'm really depressed i just want to know if anyone else is going through the same situation?

 

By domestic on Thu, 07-14-11, 10:53

tmcoop

not only did i suffer a bout of depression i crossed the road so that others wouldnt look in the pram and see the look of horror on their faces i wont say i wanted normal for my child but i did feel that i had been punished for no reason but that was a long time ago and my biggest fear was i would be inadequate to rise to the challenge of my babys needs
now things have fallen into a pattern and there is a lot of help and info out there in the world today to help u and more providers of childcare schooling are informed and able to cope with the spectrums needs

have u had space where u can just get some u time and do things like u use to do even if its to wash your hair and bathe by candle light it all helps to lift the mood and make the day more bareable in the early days

but be kind to u and dont feel that u are at fault for wanting things differently we all adjust in time and im sure u are going to be fantastic at parenting such a special child

be kinder to yourself

love D

By Arieberry on Sun, 07-17-11, 09:42

I also feel like I may be going through a similar situation as you. My 2 yr old daughter was recently diagnosed and now I'm having to have the strength to schedule all the appts neccessary for funding to get the ball rolling for therepy's. I too feel depressed and guilty for my depression. It's an ongoing roler coaster.. sometimes I get the strength to feel happy and embrace the fact of early diagnosis and intervention. Who knows what the future holds for our children. I also know nobody going through what I'm feeling and as much as my family and friends can try to give me some sort of support, they just dont understand. I dont know if any of this helps you but I just thought that it might be nice to talk to someone going through a similar situation. I know that its somthing I've been searching for.

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By Lisa666 on Sun, 04-29-12, 17:57

My mother in law has been telling me for a very long time ,y son has autism. I DO NOT WANT TO ACCEPT THE FACT THAT HE IS!!!!! I dont want to accept it but I know I need to, to help my son. We have to be in the same boat. I will always b here somewhere in the mix.The e-mails from Rachel Evens are also helpful information. Because what is true?? and what isnt?? is something I struggle with.

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By domestic on Sun, 07-17-11, 11:41

arieberry

i guess we all need a safe place where the words and thoughts are not condemned by others who think they know what we need or should be doing

just to know that someone else is trapped by noises lights and a million other things in the course of day to day living makes it so much better in the long run

be kind to yourself

love D

By Lisa666 on Thu, 04-26-12, 21:29

I wonder what did I do wrong??My son was 2 months early. I have health issues but chose to get pregnant. Nowe I am having a hard time dealing with it. Looking for a people support group that meets face to face. As I read I cry!! Feel so helpless. How do I help my son????????

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By ataylor on Sun, 04-29-12, 16:29

I'm lucky that my son is a higher functioning autism, but it's difficult just the same. He can care for himself, communicate well, learns quickly and can be affectionate at times. But at other times he'd be happy to spend the entire day alone only contacting me if he needs me. He takes ADHD meds to slow him down but even with that he barely sleeps more than me and still has poor impulse control. The stronger meds make him paranoid and flair up the OCD side of things terribly. So we don't use those meds as watching my baby stress about someone breaking in to kill him is just too much. And then there is the sensory issues where he watches tv upside down, loves to spin, chews on everything and I mean everything, hates jeans, but doesn't mind his shoes to be on the wrong feet, hates socks in the winter, but wears them with flip flops in the summer, he has certain foods that he obsesses over eating, begs for eye drops cuz they itch and then has to be held down to get the drops in, and so on. Just resently he had kidney stones and those can be horrible. When he stoped moaning I asked if the pain was gone and he said no but his mouth got tired. He had 5-6 pain episodes and handled it without pain meds since he didn't appear to be in pain at the hospital. He's obsessed about times, schedules, and money, really anything number oriented.

It seems overwhelming and I'm sure your stuff does as well. But despite his problems which he is well aware of he just doesn't care. He knows he's different and doesn't care. He loves who he is. He's passionate about his cat and anything else fluffy/furry, builds from blueprints that confuse me, could probably budget for me if I let him, loves rollerblading, bikeriding, wants to garden, oh I could just go on.

You have to find the really great things and see how the disability makes those great things possible. Despite all the negative you have to find the positive. It's there and it will keep you strong when you get down.

As for sensory therapies I've found that he tends to seek out what he needs. I just have to make sure its available in a safe manner. For instance he loves to chew so we keep straws, gum, popsicles, etc so he doesn't chew his shirts or lick his shoes. So keep going what you need tends to be right in front of your eyes if you'll just be willing to see it.

Stay positive.

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By Lisa666 on Sun, 04-29-12, 18:14

My son is only 2 and a half. Doesnt want to talk so u have to understand his way of telling you what he wants or doesnt want. thats discuraging. but he to licks shoes or did. we are trying to stop those things. lol. some days it works others it doesnt. loves to get tickled and his belly blown on by myself or his dad. I love him so much. Just get frustrated sometimes.

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By ataylor on Sun, 04-29-12, 19:56

Yeah that makes it harder. I teach preschool and I've had numerous kids in my room who intially didn't speak english. So I can appreciate the frustration of not knowing what he wants and the worry that comes from not knowing what he might learn or not learn to do. Like I said before my son is higher functioning so I get frustrated that he doesn't qualify for services because he can communicate. Hopefully your son will learn to communicate in some fashion. As for the sensory stuff I haven't found a way to eliminate the behaviors. Mine understands what he does ins't normal but still does it. The urge is just so strong. I just find better options for him to express that desire. Since yours is younger if he still has the fascination for shoes I'd give him a thing of them to explore. Different materials and textures, maybe a few sizes larger so he can put them on if he's working on that skill. Just a nice collection to be played with and not worn outside so you don't have to worry about them being dirty if they do find there way to his mouth. Hopefully you have some good resale stores around so you can purchase them cheaply.

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By Lisa666 on Wed, 05-02-12, 11:04

Thank you for ur words. Hopefully it will all B ok. lol. My hubby didnt talk til he was 4 so hopefully my son will be high functioning person also. Am just concerned, confused and looking for a person to person support group. Any Suggestions would b helpful. THANK YOU Everyone for your helpful suggestions. Much Apprecion to you all!

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By domestic on Wed, 05-02-12, 21:27

lisa

depending where u live i would check out the local shops and community centers
over the years i have found the corner shops always know where to find things if they cant supply it
failing that find the local specialized school in your area and contact them they along with the great social services will know if and when groups meet in your area
but local places of leisure like the pool often run classes now for special people to do classes as we are all aware obesity is the new disabillity that we have to put up with according to those in charge so go see
we belong to a group that meets on a casual daily bases and does great art hmm well art and music hmm sound etc but we go swimming in a group with those that can swim not us of course and play badmingtomn well collecting the ball of the floor lots or shoving it under the net with the racket but they have lists of things for little ones to join and go to

when she was little it was a case of take her home and get on with it so u are lucky cos all the things are out there and im sure as soon as u can get started it will all be fine

must go its time to clean the bathroom this week our friend is toothpaste :)

love D

By Lisa666 on Wed, 05-02-12, 23:40

Thank you for the support options. Duh why didnt I think of that?? LOL at self. I know there could be worse things with my son and somedays are defineatley better than others but am trying to work through it. I have a real female friend whos son also has autism, she helps me through most of it. But shes been busy with her mom and I am least of her worries at the current time. I love my son dearly and thank you for suggesting I get him into something. He does go to an early intervention program. That gives me some me time. But I just dont know what else to do. We are working on potty training. Going to be a long while im told. When I read articles online I sit and cry. Usually when son is with his gma and gpa.

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By Lisa666 on Fri, 05-04-12, 15:14

D
Damn it quit making me cry!!! Just kidding. Thank you for ur advice, suggestions and ALL the other info. We had a drs appt today. Our son is making good strides. We ARE gettinh there. Going to try to get him into summer therapy. I love him so much... I wouldnt trade for nothing. Laughing gently. Jr is chasing and kicking our two dogs. Any suggestions on that?? The older dog is 13 years old, lab shepard mix, has arthritus and he (the dog) has not been around children much. Our female will Be 9 in a week. She is pit/springer spaniel. Gets upset and they both growl at him. Trying to decide if older one should b put to sleep or what. At an emotional stand point. LOL Yet dont want our son getting bit neither.

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By domestic on Fri, 05-04-12, 22:10

lol hon

we have an ancient cat that prefers to be at the other end of the house rather than be anywhere near the child of mine
u could try lifting him away and saying no not sure how much that will help but i have found that constant repeating of an action and sound does work
she use to catch the cats taIL untill the cat turned on her now its a question of they see each other occasionally and she still holds her hand and whines but it happened years ago so at least i know she wont go near any other cat
i guess if the dog cant find a safe haven and u dont want jr bitten than its kinda to have the dog put down after all they are a bit bigger than the moggy so harder to find safe hiding places a friends little boy used to lie down with the dogs and when he finally learnt to be potty trained he cocked his leg like the dog to go
so as usual im neither use nor ornament but life is sure interesting when u have a little one
let me know how the docs went and the things they are going to try and good luck with summer camp my eldest boy did camp anne for disabled adults whilst he was in uni many years ago and loved every minute of it
love D xx

By Lisa666 on Sat, 05-05-12, 10:27

THANK YOU!!!! You are a wonderful person who makes me believe I was given Charles for a GOD bound reason. Its just tough but U know that!! LOL The dr said he was doing Much Better with great improvement since the ;ast time we saw her!! For me that was excellent. Thank You Lord Jesus. If the ABC center cannot do a summer program, dr wants to send him to thearpy (speech,occupational and physical) at our hospital or to Lima at St. Ritas. Dr doesnt want him to loose what he has gained. Had Autistic fit at the drs. She said that thats what it was. trying more everyday with ur help. Wish we could meet in person. :) Love you and our children! again, Thank You Greatly

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By Liana's Mom on Sat, 05-05-12, 16:45

My daughter was diagnosed with speech delay at 15 months and I immediately started early intervention. My daughter suffered from having fluid in both ears and she had some trouble hearing, her hearing test would show abnormal due to her fluid in her ears. at 18 months she had her tubes but in and her fluid drained that really made a difference and she began to react better to sounds and words that we spoke to her. At the age of two she was getting frequent throat infections for a year straigt so her tonsils and adenoids had to be removed at the age of two (that was horrible) but we had an excellent ENT which was wonderful. At the age of 2 1/2 she was diagnosed with PDD because of her lack of eye contact, and her severe speech delay and social skills. We immediately increased her therapy hours and she made enormous progress and also my husband and I played a tremendous part in her progress it was very very difficult to deal with everything to have a child on the spectrum the key to everything is patience lots of patience. There were many times and still till this day that I just have to cry because the daily tasks can be so overwelming and overbearing you feel like you wanna faint. But what I have learned more than anyting is that no matter what kind of therapy or teaching your child may get you are the #1 teacher in there life.

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By penney72 on Sun, 05-06-12, 21:13

Hi,
I havent' read all the threads on this discussion but just wanted to comment. I feel probably exactly the same way as most of you. I kind of knew that my three year old son has autism but was not prepared for the actual diagnosis.
I have been diagnosed with fibromyalgia in part due to the stress of worrying about my son and wishing he would talk, potty train, etc.
I am glad to vent to people that understand. Some people don't know what to say or do. I don't want them to ask questions because right now I'm not ready to talk to people about it that don't understand. I explained to my co-workers that I am having a hard time emotionally told them why and stated that I am not ready to talk about it right now.
Tonight I had my first real "break down" of sorts. My son was trying to communicate with me and I was feeling very tired and raised my voice and asked him what he wanted. Then I just felt so sad and broke down crying because i know he couldn't tell me. I just cried and said "why" "why" hitting my pillow. I don't know what kind of world he is living in.The sadness is just so unbearable. I feel like I am looking after two children, not one. It's simply exhausting some days. I guess you can all relate.
Thanks for listening.

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By domestic on Mon, 05-07-12, 09:55

penney

hi there honey
i am so sorry that u are having health problems along with attempting to contemplate a life of looking after a child with unique needs
to be fair its good to cry and get it all out of your system we are battling the demon toothpaste last week she learnt to squeeze the tube great i hear u say trouble is she is always doing it now and so pleased as we clean toothpaste from everywhere
u are the best person to interpret for your son and so dont beat yourself up about learning how to do it
as for the world your son is living in its a peaceful place where the worries of the day dont interfer and they are safe because your love makes it so
sometimes i look at my child sitting quietly smiling or giggling to herself and wish to share those enchanting thoughts that make her so happy or sometimes i see her frown and wonder if she like me is trying to come up with a new idea to communicate or if the simple things are upsetting her or even if she is unhappy with something in the room at the time
please feel free to share your thoughts and fears with us and know that we are all on this journey of life together
take care love D

By Lisa666 on Mon, 05-07-12, 13:43

We are ALL going through the communication Situation. My son does the same things. Sometimes I wonder which Angel is watching and caring for him. So Sorry you are having probs with ur own health. We are here for you.
We know what it feels like even when no one else does. Luckily I found this website!!! THANK GOD!!!! its hard to understand when drs cant. Lots of love and understanding!!!!! Here always

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By domestic on Mon, 05-07-12, 09:57

lisssa

still working on the face book thingy honey need one of my older ones to set me up a page or let me use theirs lol
but come on little sis how has your daY BEEN today and what did the boy do that was great
we have toothpaste stairs hope this is a quick craze

love always D

By Lisa666 on Mon, 05-07-12, 13:36

Ok that is fine. Just want you to be able to see my son. He is the best and worst thing to have happen to me. A day or 2 ago, Jr said Yeah or Yes. SO excited.
Today has had a few little fits but getting used to that!! LOL He has been himself but seems to be better for him. Working on A support group person to person. He goes to early intervention tomorrow. I dont think times are of the essence. LOL
Ya I wont like it if jr starts that. Put up where she cant get it?? He feeds what he doesnt want to the dogs. We live in a trailor and space is limited. Boaz ( male 13 yrs old) doesnt know how else to deal with a child. I feel bad but??? My dad told me he would Kill him(the dog)
Hes whining gotta see what is up!! Hopes to a good day for you!!! Love ya and thank you Lisa

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By penney72 on Mon, 05-07-12, 14:58

Thank you all for the support. I shed a few tears while reading your comments but that's okay:)

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By Lisa666 on Tue, 05-08-12, 20:01

Penny
I spend alot of time sitting here reading and crying. Its normal. And I try to Look at the bright side of things. an example happened today actually. I am sooooooo releieved. Jr is in early intervention, well in class one of the lil boys was crying and our son jr went over and attempted to hug him and trying to help. That is sooooooo special to me. Hell Im sitting here crying just telling u.
Every day is different. Somedays you have to show them ur not kidding, but other days are awesome. His mood and my mood dont swing in the same motion. LOL. Not always but mostly!!! Here for you, will listen, and know U are NOT Alone! 1 in 52 boys are diagnosed with autism. It used to be so much higher. D will tell you, that you were given a gift!! Every child is a blessing. Be patient. That helps you help her.Its not always fun but at the end of the day you still love them. I remember sitting in the hospital rubbing my baby saying I love you baby boy!! AND I DO LOVE HIM VERY MUCH.

Love coming ur way:)

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By Lisa666 on Thu, 05-10-12, 11:18

I sit on here and cry alot!! It helps get it off your chest and helps me feel better!! Let this be ur SAFE place.

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By domestic on Tue, 05-08-12, 01:17

penney

when u are ready to chat honey we will be here to listen cant tell u its all going to be alright but can reassure u that normal is how our children are for them and that u are going to be a great advocate for your child
take care and have a good day

love D

By domestic on Tue, 05-08-12, 01:20

lissa

its great that jnr said yeah or yep cos that shows how much progress u have already made
and to be honest the toothpaste craze is fine i just like to grumble about it tbh

as for jnr killing the dog nope i dont think it will come to that but its great to see your dad offering positive options lol
let me know how early intervention goes as i am interested in all that happens nowadays for them and its a great start in life
look to the other parents that go there to get some one to one real life support and enjoy the benefits of knowing its all going the right way
love D\ xx

By Lisa666 on Tue, 05-08-12, 20:18

D
Im sure you read on pennys page that jr tried to comfort another lil boy in class. We are so excited. me more than hubby. lol
he attempted to jump on the trampoline in thearapy at school. He is really a smart lil boy! he loves games espeeeecially outside.
How are things in ur ache in life??:)
Ya I like to gripe about the autism issue cause sometimes I think they are full of it. But his doctor has the training. She told me to NOT apply for SSI. He gets it so up hers!!HAHA
It helps ALL women to get sh*t off their Chests. Always makes me feel better. LOL
They say patience is a virtue. Definatley when u have a child who is different. I dont know what to believe or what not to believe. But we are still trying to figure it out;)
Thanks as always...
Love ya lisa

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By domestic on Tue, 05-08-12, 23:39

lissa

honey im so happy that jnr was attempting to help out it shows he has an understanding of others around him not like our monster who almost dropped the baby her nephew when she first held him cos she forgot good thing her elder sister can catch
its great he is trying to do things cos that shows a good co ordination coming along
to be honest i have settled into a routine these last ten years or so and i love being with my child we do great things like go shopping and she still only spends her handful of copper shame things cost more but its fun
i think u and penney need to take the time to sit back and let the pressure ease a bit yes its worrying but dont miss out on all the great things that are happening whilst u are mourning the loss of what might have been
AS for believing all children in this spectrum are different and no two are alike its great to have something so unique that no one else can possibly have the experiences u are going to have and u are the one that makes it happen u decide on theraPY AND if u can or cant do things so that makes u a powerful person yes reports are conttrary and some as u know are bad some are good so my advice and one i live by is do what the gut tells u is right and enjoy it all
have a great day we are going shopping for tomato soup and biscuits
love D xx

By penney72 on Wed, 05-09-12, 17:54

Hi to Lisa 666,
That is truely special that your son JR tryed to reassure the other child. I think children with autism are very sensitive and that is one of the positive parts. I know my son John is very sensitive too. When his dad and I just have a heated discussion he gets very upset and starts making noises for us to stop. He certainly makes us aware that he doesn't like it when dad or mom is upset:)Another plus I am thankful for is John has never been aggressive with another child. It doesn't understand why a child would even be aggressive. I'm thankful for that:)

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By domestic on Thu, 05-10-12, 06:36

penney

sounds like u have a little star there by your side

hang on to him tight and give him a huge hug from me his auntie domestic lol

good to hear u so cheerful about things today

love D

By Lorib31 on Tue, 05-22-12, 13:20

My son kellen is a very low functioning autistic. My heart breaks b/c of this! He is 7 and can barely say words and still wears diapers! We live in Ohio where I'm not sure if it's an all across the country deal, but he gets an autism scholarship every year. The scholarship pays for him to attend a special school, but I worry about him nonstop of course! I get so depressed myself and just cry sometimes! I also think what did I do or better yet what did my son do to deserve this? I feel fortunate to have websites like this just wonder if anybody else has any comments as far as help if they have a child this severe any help with what you do as far as potty training? I feel like I am letting my son down I just wish there was more resources for our kids/loved ones right now! My thoughts are I just wish the funds could be provided now when they are children than when they are adults and it gets much harder to get them to understand and learn! God bless you all continue the fight against this terrible disorder that for me has robbed me of my son. I apologize to everybody if I sound bitter but it's very hard as you all know! Thank you and again God bless!

Lori

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By Lisa666 on Tue, 05-22-12, 20:00

I know how you feel. Its Life. I feel like Life is beating me to Death. My Husband works 12 hours a day and has to sleep so where does that leave me? with the autistic spectrum disorder, mommy deals with it. SUCKS!!! I am in Auglaize county and Allen County has a support group every 2nd tuesday of every month i have a place but no address. they have child care and everything. that may be worth the drive. LOL

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By penney72 on Wed, 05-23-12, 08:55

Hi Lisa666,
I feel your pain. I work full time and am now considering how I can work half time because I have fibromyalgia and dealing with that and my son, I just can't work full time right now. I got up this morning for work,dressed, put on some make up and my body was just aching and tired, i called in sick. I used to feel guilty about calling in sick but I just don't care (that much)anymore. I don't have the energy anymore to give. The tank is all most empty. When you said life is beating me to Death, i totally understand. I just keep telling myself, to get through this day and not think about tomorrow. I know though it's not easy and like yourself i live in an area where support services are lacking. I had to travel almost 5 hours to get an assessment for my son by a speech therapist and psychologist because they could not adequately assess him where I live. I keep hearing "we" have to advocate for our kids to get the services we need. I understand this because well I know my son the best, but sometimes I just don't want to explain "everything AGAIN". I hear your frustration. I think I am realizing that change has to come through government, I dont' know how right now, but I am realizing I need someone with more power on mine or "our" side in this issue. Thanks for your post Lisa666. It really got me thinking, and I can certainly relate.

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By Lisa666 on Wed, 05-23-12, 11:46

Penny,
REMEMBER THE GOOD THINGS!! SMILE AT THE GOOD THINGS. This helps me drastically. I remember when I wanted my baby. I didnt ask for what i'm or my son is going through, but its the hand we were dealt and we just have to do whats best for our child. 5 Hours?? WOW!! At least we have things a little closer. LOL
Remember you were given a wonderful child. Its tough, but Im tougher!!! Gotta pick ur battles. LOL Youi just have to learn to do what helps. My son was 55% behind, in 9 months he is only 35% behind. That was awesome news. My son attended an early intervention school. A week or two ago my son tried to comfort another child who was upset in his class!! Praying that it gets better, cause it could be worse. ALWAYS could be WORSE!!
Im sending prayers ur way for you as well as your child. We all need help sometimes. Im a 34 yr old who has had type 1 diabetes since the age of 5 1/2. Have high blood pressure and kidney issues. Depressed is an understatement!!!
I understand and am just a click away, LOL
Love and prayers heading toward ya :) Lisa666

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By domestic on Thu, 05-24-12, 03:15

lorib

i too have a low functioning child and we forget as many things as we learn almost as if the brain cant hold info for long or mayb its just that the things that are important to her are not readily available for me to see or hear
i know that its a hard thing to have to look around at friends and family who have children of the same age and know that your little man is missing out even my grandchildren have overtaken their aunt in a lot of ways but its fine
she is a delight when she smiles or chuckles and when something is amusing she is lit up with joy and those rare moments are worth waiting for
u are not letting your son down at all u are there day and night and that is beyond parenting that makes u a special person one who has strength and inner beauty to see the best for your child and u are allowed to grieve for the things u are missing out on its not bitterness when we want our child to do well or achieve something special we got knickers by the time we were teens a tad late but we got there in the end we just kept reinforcing the toilet and tried to make sure we had as many hits as misses so we could praise etc when it happened
even now i still have to take her somedays when she is caught up in her world and those few words are great to form a base of language who cares if its your own version as long as u are happy and he is its all gona be fine
big hug honey
love D

By domestic on Thu, 05-24-12, 03:17

penney and lissa

hey girls u are both doing a great job we have been making daisy chains lately not that many of the flowers make it to me whole but its fine we are having fun
u are both strong women who are going to make a change not just to your childs life but others and the reason is you both know u are super star parents given gifts to cherish and care for and only those blessed with the talents get a gift from the heavens

have a great day

love D

By Lisa666 on Thu, 05-24-12, 08:03

Thanks Dee

At least someone thinks I do well!!! LOL I have learnt a great deal about love I never knew. :) We are doing summer thearpy with our local hospital. Hopefully, it goes well. Sometimes it just feels like u dont have the strength to go on, BUT TRUST ME, YOU DO!!!!
Yes sometimes I think its a gift too, but other times its not!:)
Trying to get up and deal everyday. Do my best, but sometimes i'm just not sure its enough.
Always hope for a good day! Not having as many "fits" as we call them, here lately. Hope its a good sign:)
U have a good day too! Thanks Sending Love and prayers ur way too!! EVERYDAY!!

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By andine on Thu, 05-31-12, 18:23

My son is 16 and has autism. It was especially difficult when he was younger because I couldn't really take him to too many places because he scared the other kids, had tantrums.... There is a lot of help out there so I would encourage you to get as much help as you can as soon as possible. There are so many wonderful therapists out there who will give you more places to look for help. My son has been able to do things I never thought possible but he had a lot of help and a lot of therapy. Vision therapy, movement therapy, horse back riding, etc. Not all therapists are good but you will learn to be able to tell the good ones from the great ones. Just don't give up and every day is a battle to get more help for your child but it's worth it. Tutoring is also very important. And advocates for education especially if you can't afford private schools. Don't give up. Help is out there. It may not come from your friends or family but it's out there.

The best advise I ever got was "your are his mom, you don't have to be his therapist". Don't feel that you have to do it all yourself. And if someone is not helpful, walk away and find someone who is. Get help now. don't wait. Don't waste your time and energy on people who aren't going to help you.

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By nanosmom on Thu, 05-31-12, 20:39

I have a son and since he was 2 my family was telling me to have him checked for autism. My husband was in such denial that I held it off til now a month before his 6th birthday he was diagnosed. It was great to know what he had and that my child wasn't just "a spoiled brat" as all people would say. I fell into a depression as well but there are so many people and my family willing to help. It is overwhelming and at times I want to run especially on his bad days. It's always good to know I'm not and your not alone in your feelings. Every parent wants their child to be "normal". But we still love them. And that is all that matters. Just try to take a break and breathe. I do at night after all 3 of my kids fall asleep. I just breathe and at times cry. I am taken it one day at a time. That's the best way for me to handle it.

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By Lisa666 on Fri, 06-01-12, 09:53

Sometimes in Life you Just have to make a descision. Mine has been to get my son thearpy. I dont like it when he doesnt want ANY help. Hes trying to be an independant little man. Has been kissing and hugging more here lately. I love him so much...
Still keep praying and Hoping with the thearapy he will make good strides. Its not always as bad as any of us think, or sounds. I like to grumble about things a lot, but am learning to celebrate the gains in Jrs life.
He gets to start preschool when school starts. So excited.

When jrs having what I call a FIT day, i just try to go with the flow! :)

Love you all! Lisa666

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By nanosmom on Fri, 06-01-12, 10:45

For my son he does speak but not well. He tends to speak in 3rd person. He does well with picture scheduls. Maybe you can use picture to let you know what he wants. It may be exhausting and overwhelming having him point at a picture of food then trying to ffigure out what he wants. You would have to take him to the kitchen and have him show you. Point to the food picture and
ask what food? I learned the less words the better. To much explanation can cause the child to become overwhelmed and have anxiety.
Good luck Lisa666
Gore you find what you need. Also it wasn't your fault. It just happens. No one knows why. I had that feeling too. Every one does.

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By Lisa666 on Fri, 06-01-12, 12:58

We just got home from therapy. Working on the pointing issue. Even trying the pictures. I will do whatever to help my son. Life is difficult with a spectrum child, but also A blessing! Domestic keeps trying to tell me that and the ,ore days that go by, she is right! Focus on the GOOD and GREAT things, especially in those bad moments. I keep remembering that I wanted him, but hubby works 7 days a week. We miss our time with Big Chuck too. Im just a click away.....
Love Lisa666

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By domestic on Sat, 06-02-12, 22:49

to u all

the voices that matter are the ones u raise to get your children help and the loving u do for them
dont forget to spend time on what u need as well even if its that sinful choclate bar and a quiet night doing the nails

we have pictures in most rooms and a book she can bring if she wants something but after more than twenty years we are doing great no she no longer goes to daycare but we spend hours watching the world go by and sitting out in the park and really lisa u know your little man is a blessing :D

dont forget u are allowed to be angry and frustrated and upset we were yesterday when we couldnt console her tears but they stoppped finally and it was all over losing her leaf

i hope all of u have a great day and enjoy it
we are skate boarding today so will let u know if it ever gets the rght way up or we sit on the grass in the rain and just spin the wheels
love D

By xwona on Sun, 06-03-12, 08:27

My son is almost 16 and was diagnosed just before he turned 4. Over the years, I had boughts of hard times in dealing with the diagnosis. I always invisioned my life with kids would be fun......getting disneyland passes and going alot, weekend camping trips to the beach, buying quads and teaching my boys to ride. But no, my life is not like that. We are more like prisioners in our house. My son does not do good in crowds and he is low functioning. I feel guilty for bringing another child into this world because he cannot experience life like most kids because of his brothers disabilities. I have learned to except help and to have respite so my neurotypical son and I can go out for the day and do things together. I have learned to adjust, so it gets easier but I still have anxiety about the future when I cannot take care of him.

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By domestic on Mon, 06-04-12, 03:26

xwona

oh honey i think we all had dreams of what we were going to do as parents but some how it didnt get there or turn out quite right but we are going to have a great life nevertheless
u at least are having respite and on the path to some sort of future for your child and yourself in my case her dad wont here of it so we continue and as long as i have my health we are fine but as i have several other brats as well it has been hard to juggle the needs of one against many
i normally sit on the sidelines and watch dad and the others doing things while we are on the fringe of it all not ignored but not quite there
as they all reached the twenties and early thirties it is easier to have them come and sit her so that dad and i can do things together like the shopping for a long time he did it on his way home from work as we knew she wouldnt go out although she likes the park as long as its quiet good thing grandchildren get up early really so we can be there with the sun rising
i guess life is like being a prisoner but i forget to be honest i love to see the smile spread over her face as soemthing makes her happy or to see that we are progressing although the things we are doing are not earth shattering or breakthrus just simple things like shoe laces and toothpaste for teeth
and i have several hobbies that i have taken up over the years like knitting although i must admit i have not finished anything yet the monsters grow or i loose the pattern or my normal just drop stiches left right and center

take a deep breath and know that without u those little ones would not have a wonderful time and i know that u are not only doing your best u are the best

love D

By Rachelpoe on Sun, 06-24-12, 17:13

my daughter will be 6 in August. She has autism we have known this since she was three. there are days were I feel depressed and guilty and all the above she is a loveing little girl most of the time loves hugs and kisses she does have some sensory issues though she chews on everything loves to put anything that will fit into her mouth just a few weeks ago my husand and I had to take her to Children's to get a quarter removed from her throat! she also licks everything and still can't talk very well but she does talk alot better than she did when we found out that she has autism she is also very hyper bounces every were all day I feel very alone here at home with her I don't have a job I'm afriad to leave her with anyone for any reason the school pretty much asked me to stop taking her she is suppose to start another school in august and I do not want to leave her there I get very scared when she is away from me I have only left her with her father because he is the only one i trust to leave her with i have only been away from her maybe 10 times since she was born i'm glad i found this site i hope there will be someone in this group that is going threw what i'm going threw and maybe some one in my area so i can have some one to talk to about our children because i don't know any one else with a child that has autism and have never been around another child with autsim so please feel free to e-mail me Rachelpoe86@aim.com

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By Lisa666 on Mon, 06-25-12, 10:25

Rachel, Sweetheart, I think we ALL go through our moments. Yes its difficult. Some good days, some bad, but we get through them. LOL. I do not have a job either. Not that they are easy to come by anymore. haha.
My hubby works 7 days a week. 3rd shift at that! I am with our son more often than not. Gma takes him and that helps. Jr is 2 years 8 months. We go to thearapy at the hospital. I dont have the fear of leaving my son, always. But sometimes I do. Its ok. Do the best you can do for your daughter.
We are in Ohio. Where are you? Enjoy the joys of ur daughters life with her. The joys are wonderful!! My e-mail is lisa.barga@gmail.com I'm not the best in checking it thou. lol Im on facebook also.

Keep ur chin up!! Smile at things you have forgotten to appreciate :)

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By Rachelpoe on Mon, 06-25-12, 13:37

lisa666: I'm also in Ohio and on Facebook what part of Ohio are you from? I will look you up on Facebook is barga your last name? anyway thank you for your reply I hope we can become freinds :)

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By Lisa666 on Mon, 06-25-12, 19:32

Rachel
We are in St. Marys. Grand Lake with the Algea. LOL
yes Married a Barga. Lots of Bargas in Greenville. Shadrach is my madien name. Find me under either. I would love to be friends. Autism is very stressful for me and others. I stress daily. especially with the Fits as we call them. with jr being so young its all difficult!
I may not be able to do much, but listen and try to assure you its not just you. We all have issues. they just changed my meds as well. It sucks. but life goes on. LOL
I am here if you need me... Lisa

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By Rachelpoe on Tue, 06-26-12, 08:35

thank you so much lisa I sent you a message on Facebook I think it's you lol Idk were grennville is do you know were Brown county is? that is were I am. I am very glad to know i'm not alone in this for along time i felt like there is no one that can understand how hard it is to raise a child with autism so i'm glad i found this site and hopefully a new friend :)

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By Lisa666 on Tue, 06-26-12, 22:21

Rachel,
Was just on facebook, I will check thou. No I do not know where brown county is. Whats close thats a bigger city??? Know where Jackson county is. Upper or lower Ohio?? LOL
Yes I know how hard an autistic child is. We found out less than a year ago. But he is having trouble communicating. He has screamimg FITS. for hours!!!! So frustrating... and Yes no one understands til they have to do it. That is so true. I had the luck of getting into Help me grow. but they do nothing after age of 3. I have had to find resources that work. After diagnoses, I got Jr on SSI. that extra money helps get him things he needs.
I felt like that too. its to the point where more ppl are having autistic children. 1 in 52 boys are diagnosed. dont know what the girl numbers are.
I get emails from Racheal Evans. Those are helpful to understand some of the things you and your child are going through. Read through the past posting, you will connect with them! I cry alot! I am on xanex and 2 antidepressants. I am adding you to my prayers everyday!! Here for you!! Love Lisa

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